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You are here: Home / Mum of four-year old with severe epilepsy says she still has ‘no choice’ but to break the law

Mum of four-year old with severe epilepsy says she still has ‘no choice’ but to break the law

PUBLISHED: 13:44 01 November 2018 Jessica Hill Indie-Rose Clarry Archant Although from today, medicinal cannabis products can now be legally prescribed to some patients in the UK for the first time, one Suffolk mum claims she will still have to commit a crime to get her daughter’s life-changing cannabis medicine. Indie-Rose Clarry with mum Tannine Montgomery in Holland picking up Indie’s medicineFour year-old Indie-Rose Clarry, from Clare, near Sudbury, has Dravet syndrome – a severely disabling form of epilepsy which leaves her at times unable to walk or chew her food.Little Indie has endured eight anti-epileptic drugs with no response in reducing her seizures, but the family have seen progress with Bedrolite, which contains chemicals produced by the cannabis plant.Although the medical cannabis laws have been relaxed today, Indie’s 29 year-old mum, Tannine Montgomery, says its “terrible news”, because the new NHS guidelines state that patients should be weaned off Bedrolite to go onto Epidiolex, a medicine produced by GW Pharmaceuticals.Ironically, the cannabis harvested to make Epidiolex is grown in Wissington, just a 20 minute drive from little Indie-Rose’s home. “I will still be breaking the law and travelling to Holland to get Indie’s medicine – I have no choice… Read full this story

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Mum of four-year old with severe epilepsy says she still has ‘no choice’ but to break the law have 342 words, post on www.eadt.co.uk at November 1, 2018. This is cached page on wBlogs. If you want remove this page, please contact us.

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